An Evening with The PolG Foundation

On October 21, 2024, The PolG Foundation hosted its inaugural networking
event, An Evening with The PolG Foundation, in New York City. The event
was organized by our New York-based Board members and committed
friends, and was graciously hosted by Ms. Cindy Gavin at her home where
over 50 guests gathered. This special evening provided an opportunity to
introduce the Foundation’s mission to a diverse group of supporters and
leaders, ranging from industries like biotechnology to investment banking.

The evening began with an introduction by our founders and PolG parents,
Robert and Julie de Luxembourg. Dr. Brian Tseng, our Chief Scientific Officer,
and Dr. Vamsi Mootha of The Broad Institute followed by a compelling
scientific presentation. It concluded with a lively Q&A, fostering dialogue about
the science behind PolG disease and the critical need for continued research.

The following two days in New York were equally productive, with numerous
meetings to strengthen our network and share meaningful conversations with
other people impacted by PolG disease. During this time, Robert and Julie de
Luxembourg, alongside Dr. Tseng, had the privilege of meeting
neuromuscular specialist Dr. Michio Hirano of Columbia University Medical
Center. They also met the Bertucci family, who recently lost their adult
daughter, Sabrina, to PolG disease. Sabrina’s selfless organ donation has
since inspired Project Butterfly, an unprecedented research project
championed by her family and supported by the Foundation.

We are incredibly grateful to all who attended the event and who we could
speak to over the weekend. Your interest, support, and commitment are vital
to advancing our shared mission to cure PolG.

Part of the Foundation’s Board of Directors at the event.

Julie and Robert de Luxembourg, Brian Tseng and Dr. Hirano from
Columbia University Hospital meeting the Bertucci Family, a family
affected by PolG and friends of The Foundation.

The NYC Event organising committee.