PATIENTS
POLG Community
The POLG Foundation partners with leading global communities, researchers, and patient organizations to connect families with resources, support, and hope. While we advance science and research toward a cure, we remain committed to building a stronger, more connected community for those living with POLG-related disorders.
A letter from a parent and founder.
As the mother of a son who suffered from a POLG mitochondrial disease, I know only too well that a POLG diagnosis is extremely difficult to hear, to accept and to navigate. Similar to what I experienced, I imagine that you may be feeling overwhelmed, confused, and isolated as you seek answers about POLG mitochondrial disorders.
When our son was diagnosed, we were profoundly grateful to all the MITO foundations that offer guidance, community, and support to POLG patients and their families - for without them our family would have been completely lost.
In contrast, we quickly discovered that virtually no research on POLG existed, leaving our family feeling helpless and scared. Did no one want to help treat POLG patients? We found that there was no funding available for researchers, no expensive research tools like mouse models or iPS cells, and no one knew how many patients existed worldwide.
This ignited us to take charge and create The POLG Foundation with the mission to rapidly find treatments and ultimately a cure for this challenging disease. We are actively and urgently advancing research to find therapeutics to alleviate your symptoms and to cure POLG disorders.
So while we do not provide direct patient support or care, rest assured our work is 100% dedicated to our mission - for you, POLG patient!
For patient guidance, education and support, we recommend reaching out to member organizations of the International Mito Patients, which offer valuable resources and assistance.
We send you strength and courage as you navigate this journey. Our entire team at The POLG Foundation is dedicated to advancing research and working towards a better future for you!
Warm regards,
Julie de Luxembourg, co-founder and The POLG Foundation Team
POLG patient & Family Community Resources & Network
Connect with the POLG patient and family community through our partner, MITO Action. Access resources, support networks, and information for families affected by mitochondrial disease.
Stephanie Harry, MitoAction
Learn more
For MITO PATIENTS members
Looking for local support? Visit the IMP Member Organizations to connect with mitochondrial organizations in your region.
IMP / International Mito Patients
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Additional Resources on POLG Science & Research
Explore trusted resources, research updates, and scientific insights that advance our understanding of POLG-related disorders and support the global effort toward better treatments and a cure.
UMDF / POLG
NIH / National Center for Biotechnology Information
Science Direct
Consequences of compromised mitochondrial genome integrity
National Institute of Environmental Health Sciences
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