Dear PolG Families,
As the mother of a son who suffers from a PolG mitochondrial disease, I know only too well that a PolG diagnosis is extremely difficult to hear, to accept and to navigate.
Similar to what I experienced, I imagine that you may be feeling overwhelmed, confused, and isolated as you seek answers about PolG mitochondrial disorders.
When our son was diagnosed, we were profoundly grateful to all the MITO foundations that offer guidance, community, and support to PolG patients and their families - for without them our family would have been completely lost.
In contrast, we quickly discovered that virtually no research on PolG existed, leaving our family feeling helpless and scared. Did no one want to help treat PolG patients? We found that there was no funding available for researchers, no expensive research tools like mouse models or iPS cells, and no one knew how many patients existed worldwide.
This ignited us to take charge and create The PolG Foundation with the mission to rapidly find treatments and ultimately a cure for this challenging disease. We are actively and urgently advancing research to find therapeutics to alleviate your symptoms and to cure POLG disorders.
So while we do not provide direct patient support or care, rest assured our work is 100% dedicated to our mission - for you, PolG patient!
For patient guidance, education and support, we recommend reaching out to member organisations of the International Mito Patients https://www.mitopatients.org/links, which offer valuable resources and assistance.
On our website, you can find basic information about PolG and learn about our current research initiatives.
Below are additional resources PolG science:
WE ASK YOU TO SIGN UP FOR OUR NEWSLETTER FOR FUTURE NEWS ON OUR ADVANCEMENTS.
We send you strength and courage as you navigate this journey.
Our entire team at The PolG Foundation is dedicated to advancing research and working towards a better future for you!
Warm regards,
Julie de Luxembourg, co-founder and The PolG Foundation Team
Research
The Foundation intends to become a leading funder of basic, translational, and clinical PolG research. Working with the global scientific community, we will help develop critical tools and make our findings widely available.
View ResearchGet Involved
Grab Your running shoes, oven mitt, electric guitar, whatever you love ... You can help find a cure for PolG.
Get Involved