When our son was diagnosed, we were profoundly grateful to all the MITO foundations that offer guidance, community, and support to PolG patients and their families - for without them our family would have been completely lost.

In contrast, we quickly discovered that virtually no research on PolG existed, leaving our family feeling helpless and scared. Did no one want to help treat PolG patients? We found that there was no funding available for researchers, no expensive research tools like mouse models or iPS cells, and no one knew how many patients existed worldwide.

This ignited us to take charge and create The PolG Foundation with the mission to rapidly find treatments and ultimately a cure for this challenging disease. We are actively and urgently advancing research to find therapeutics to alleviate your symptoms and to cure POLG disorders.

So while we do not provide direct patient support or care, rest assured our work is 100% dedicated to our mission - for you, PolG patient!

For patient guidance, education and support, we recommend reaching out to member organisations of the International Mito Patients https://www.mitopatients.org/links, which offer valuable resources and assistance.